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Epilepsy-specific quality-of-life questionnaires and social stigma scales in adults with epilepsy: a methodological review
Gabriela Lișinschi-Baranov1, Stanislav Groppa2, Larisa Spinei3, Vitalie Ojovan4,5, Vitalie Chiosa2, Alina Ferdohleb3,5*
https://doi.org/10.52645/MJHS.2026.2.10
Adult epilepsy generates a burden that extends beyond seizure counts and includes adverse treatment effects, role restriction, emotional distress, and the social devaluation attached to the diagnosis. The methodological problem is not the absence of patient-reported measures, but the heterogeneity with which disease-specific quality-of-life and stigma instruments are selected, interpreted, and combined in adult studies.